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BPSU - Past studies

British Paediatric Surveillance Unit team
Details of completed studies of the British Paediatric Surveillance Unit, listed alphabetically by condition.
Contents
Table of contents

Acute flaccid paralysis

Surveillance Period: July 1991 - June 1994
Investigator: Dr N Begg, Glaxosmithkline, Stockley Park West, UXBRIDGE, United Kingdom, UB11 1BT听
Published paper:听
Advice/Support Group: 听触听info@contact.org.uk

Acute rheumatic fever

Surveillance Period: February 1990 - December 1990
Investigator: Dr C Boyd-Scobie, Dr S Hall c/o Sheffield Children's Hospital, Stevenson Building, Sheffield S10 2TH
Published paper: Acute Rheumatic Fever. Boyd-Scobie, Hall S. BPSU Fifth Annual Report 1990. BPSU London 1990
Advice/Support Group: 听触听info@contact.org.uk

Adrenal hyperplasia

Surveillance Period: August 2007 - August 2008
Investigator: Dr R Knowles, J Oerton, JM Khalid, Prof C Dezateux, Prof C Kelnar, Prof P Hindmarsh
Published Paper: Knowles, RL., Khalid, JM., Oerton, JM., Hindmarsh, PC., Kelnar, CJ., Dezateux, C.,听, Arch. Dis. Child. 2014; 99: pp.30-34
Advice/Support Group:

Adverse neonatal outcomes of delivery or labour in water

Surveillance Period: April 1994 - April 1996
Investigator: Dr P Tookey, Dr R Gilbert, Dept of Epidemiology and Public Health, Institute of Child Health, 30 Guilford Street, London WC1N 1EH听
Published paper:听听Renfrew M, Marchant S, Ashurst H, et al. BMJ 1995; 310: 837听
. Gilbert RE and Tookey PA. BMJ 1999; 319: 483-487.
Advice/Support Group: 听触 enquiries@nct.org.uk

Anaphylaxis following immunisation

Surveillance Period: September 2008 - October 2009
Investigator: Dr M Erlewyn-Lajeuness, Paediatric Allergy, Immunology & Infectious Diseases, Southampton University Hospitals NHS Trust, Southampton SO16 6YD
Published paper: , M Erlewyn-Lajeuness, LP Hunt, P Heath, A Finn, Arch Dis Child 2012; 97; 487-490
Advice/Support Group:听听触听info@anaphylaxis.org.uk

Androgen insensitivity syndrome

Surveillance Period: Sept 1991 - Aug 1993
Investigator: Professor IA Hughes, University of Cambridge School of Clinical Medicine, Addenbrooke's Hospital Cambridge CB2 2QQ听
Published paper:. Viner RM, Teoh Y, Williams DM, Patterson MN, Hughes IA. Arch Dis Child. 1997 77 305-309
Advice/Support Group:

Attention-deficit hyperactivity disorder (ADHD): transition between child and adult services

Surveillance Period: Nov 2015 - Nov 2016
Investigator: Professor T Ford, University of Exeter Medical School, St. Luke鈥檚 Campus, Exeter EX1 2LU听
Published paper 1:. Eke H, Ford T, Newlove-Delgado T, Price A, Young S, Ani C, Sayal K, Lynn RM, Paul M, Janssens A. Br J Psychiatry. 2019 Jun 04:1-7
Published paper 2:听.听Eke H, Janssens A, Downs J, Lynn RM, Ani C, & Ford T.听BMC medical research methodology,听19(1), p.179
Advice/Support Group: ;

Bacterial meningitis in babies under 90 days of age

Surveillance Period: Jul 2010 - Jul 2011
Investigator: Prof PT Heath, Dr I Okike, St George's, University of London, Cranmer Terrace, London SW17 0RE听
Published paper:听Okike, IO., Johnson AP., Henderson, KL., Blackburn, RM., Muller-Pebody, B., Ladhani, SN., Anthony, M., Ninis, N., Heath PT.听Clin Infect Dis 2014 published online 4 July 2014. Access the most recent version at DOI: 10.1093/cid/ciu514
Advice/Support Group: 听触听

Beh莽et鈥檚 syndrome

Surveillance Period: May 2015 to May 2017. Follow-up until May 2018.
Investigator: Dr C Pain, Alder Hey Children's NHS Foundation Trust
Published Paper: . Pain C, Beresford M, Fortune F,Lai E, Murphy R, Taylor-Robinson D, Brogan P, and Moots R. Rheumatology. 2021.
Advice/Support Group: | info@behcetsuk.org听
听

Biliary atresia

Surveillance Period: March 1993 - February 1995
Investigator: Dr JP McKiernan, Dr D Kelly, Liver Unit, Birmingham Children's Hospital, Steelhouse Lane, Birmingham听
Published paper:听. McKiernan JP, Baker AJ, Kelly D Lancet 2000; 355: 25 鈥 29
听(1999-2002). M Davenport, J De Villede Goyet, M Stringer, G Mieli Vergani, D Kelly, P McClean, L Spitz. Lancet. 2004; 363; 1354-1357.
Advice/Support Group: Children's Liver Disease Foundation
Web:听听Email:听info@childliverdisease.org

British childhood visual impairment and blindness

Surveillance Period: October 2015 - October 2017
Investigator: Professor Jugnoo Rahi, Population, Policy and Practice Programme, UCL Great Ormond Street, Institute of Child Health, 30 Guilford Street, London WC1N 1EH
Published Paper: L Teoh, A Solebo and J Rahi. Published Online First: January 29, 2021. doi:10.1016/S2352-4642(20)30366-7听
Advice/Support Group: British Childhood Visual Impairment and Blindness Study Interest Group

Cerebral vascular disease, stroke and like illness

Surveillance Period: February 2001- February 2002
Investigator: Dr F Kirkham, Southampton University Hospital; Dr A Williams
Published Papers: Cerebral vascular disease 17th BPSU Annual Report 2002
Advice/Support Group: Stroke Association
Web:听听Email:听info@stroke.org.uk

Cerebral oedema and death following diabetic ketoacidosis

Surveillance Period: October 1995 - September 1998
Investigator: Dr J Edge, Dr M Hawkins, Dr D Dunger, Department of Paediatrics, John Radcliffe Hospital, Headington, Oxford OX3 9DU听
Published paper:听. Edge JA, Hawkins MM, Winter DL, Dunger DB. Arch Dis Child 2001;85:16-22
Advice/Support Group: 听触听helpline@diabetes.org.uk

Chemistry set poisoning

Surveillance Period: Jan 1991 - April 1992
Investigator: Dr E Mucklow, c/o St Mary's Hospital, Newport, Isle of Wight PO30 5TG听
Published paper:听, Mucklow ES. Internat. Journ. Clin. Pract. 1997; 51.5: 321-23
Advice/Support Group: Child Accident Prevention Trust
Web:听听Email:听safe@capt.org.uk

Chylothorax development

Surveillance Period: June 2010 - June 2011
Investigator: Dr P Davis, C Haines, Royal Bristol Hospital for Sick Children, Upper Maudlin Street, Bristol BS2 8BJ听
Published Paper: ,听C Haines, B Walsh, M. Fletcher, P. Davis,听Arch. Dis. Child doi: 10.1136/archdischild-2013-304364

Congenital brachial palsy

Surveillance Period: March 1998 - March 1999
Investigator: Dr G Evans-Jones, Mr S P Kay, Prof M Weindling
Published paper: Evans-Jones G, Kay S P J, Weindling A M, Cranny G, Ward A, Bradshaw A, Hernon C.听, Arch Dis Child. Fetal Neonatal Ed; 88: F185-F189
Advice/Support Group: 听触听info@contact.org.uk

Congenital cataract

Surveillance Period: Oct 1995 - Oct 1996
Investigator: Dr J Rahi, c/o Dept of Epidemiology and Public Health, Institute of Child Health, 30 Guilford Street, London WC1N 1EH听
Published paper:听听Rahi JS, Dezateux C, BMJ 1999;318:362-365
, Rahi JS, Dezateux C, for the British Congenital Cataract Interest Group. Invest. Ophthalmol. Vis. Sci. 1999;40:236-239
Advice/Support Group: Fight for Sight
Web:听听 Email:听info@fightforsight.org.uk

Congenital cytomegalovirus

Surveillance Period: Febraury 2001- February 2003
Investigator: Dr P Tookey, Professor Marie-Louise Newell. Centre for Paediatric Epidemiology, Institute of Child Health, 30 Guilford Street, London WC1 1EH.
Published Papers: Congenital cytomegalovirus 17th BPSU Annual Report 2002
Advice/Support Group: Congenital CMV Association听
Web:听听Email:听info@cmvaction.org.uk听

Congenital dislocation of the hip

Surveillance Period: April 1993 - July 1993
Investigator: Dr C Dezateux, c/o Dept of Epidemiology and Public Health, Institute of Child Health, 30 Guilford Street, London WC1N 1EH听
Published Paper:听, Dezateux C, Godward S. Arch. Dis. Child. 1996; 74: 445-448
.听(pp. 41-57). Edinburgh 1997
Advice/Support Group: STEPS
Web:听听E-mail:听info@steps-charity.org.uk听

Congenital hypothyroidism

Surveillance Period: June 2011 - June 2012
Investigator: Dr R Knowles, Population, Policy and Practice Programme, UCL Great Ormond Street Institute of Child Health, 30 Guilford Street, London WC1N 1EH
Published Paper:听, RL Knowles, J Oerton, T Cheetham, G Butler, C Cavanagh, L Tetlow, C Dezateux. The Journal of Clinical Endocrinology & Metabolism. , jc.2018-00658,听
Advice/Support Group: 听E-mail:听info@btf-thyroid.org
Study webpage:听/bpsu/cht听

Congenital syphilis I

Surveillance Period: July 1993 - July 1996
Investigator: Prof. A Nicoll, Dr T Lissauer, *HPA COSC, 61 Colindale Avenue, London NW9 5EQ听
Published paper:听, Hurtig A-K, Nicoll A, Carne C, Lissauer T et al. BMJ. 1998; 317: 1617-9
Advice/Support Group: 听触听info@contact.org.uk

Congenital syphilis II

Surveillance Period: January 2010 - January 2015
Investigator: Dr I Simms, Public Health England, 61 Colindale Avenue, London NW9 5EQ听
Published paper:听, Simms ,I., Tookey, PA., Goh, BT., Lyall, H., Evans, B., Townsend, CL., Fifer, H., Ison, C., BJOG 2016; DOI: 10.1111/1471-0528.13950.
Advice/Support Group: 听触听info@contact.org.uk

Congenital toxoplasmosis I

Surveillance Period: June 1989 - May 1990
Investigator: Dr S Hall c/o Sheffield Children's Hospital, Stevenson Building, Sheffield S10 2TH听
Published paper:听, Hall S M, Barrett N J, Balfour A H, Holliman R E, Joynson D H M. CDR Review 1995. 3, 5(2) pg 21-27.
, Peckham CS, Logan S. Arch. Dis. Child. 1993; 68: 3-5
Advice/Support Group: 听触听info@contact.org.uk

Congenital toxoplasmosis II

Surveillance Period: July 2002 - July 2004
Investigator: Dr R Gilbert c/o听Centre for Paediatric Epidemiology, Institute of Child Health, 30 Guilford Street, London WC1 1EH, Mr Miles Stanford, Ed Guy
Published Papers: Congenital toxoplasmosis 17th BPSU Annual Report 2002
Advice/Support Group: 听触听info@contact.org.uk

Congenital Zika syndrome

Surveillance Period: April 2016 - April 2018
Investigator: Dr Clarissa Oeser, Emerging Infections and Zoonoses, Public Health England, 61 Colindale Avenue, London NW9 5EQ
Published Papers: . Oeser C, Aarons E, Heath PT, Johnson K, Khalil A, Knight M, Lynn RM, Morgan D, Pebody R.听 Epidemiology & Infection. 2019;147
Advice/Support Group:

Conversion disorder

Surveillance Period: October 2008 - October 2009
Investigator: Dr C Ani, Academic Unit of Child and Adolescent Psychiatry, Imperial College London, Norfolk Place, London W2 1PG
Published Paper: , Ani, C,Reading, R, Lynn RM, Forlee S,听 Garralda E, British Journal of Psychiatry (2013) 202, 413-418
Advice/Support Group: Young Minds,
Web: Email:听ymenquiries@youngminds.org.uk

Deaths in children with epilepsy

Surveillance Period: October 2016 - October 2017
Investigator: Dr Omar Abdel-Mannan, Population, Policy and Practice, Programme, UCL Great Ormond Street Institute of Child Health, 30 Guildford Street, London WC1N 1EH
Published Paper: A national surveillance study of childhood epilepsy mortality in the UK and Ireland.听Abdel鈥怣annan O, Sutcliffe AG. European Journal of Neurology. 2020 Feb;27(2):327-33.
Advice/Support Group: 听触听support@sudep.org

Drowning and near drowning

Surveillance Period: February 1988 - December 1989
Investigator: Professor J Sibert, Department of Child Health, Llandough Hospital, Penarth, South Glamorgan CT6 1X听
Published Paper:听; Kemp A, Sibert JR. Brit. Med. J. 1992; 306: 291-297.听;听Kemp AM, Sibert JR Brit. Med. J. 1991; 302: 931-933
Advice/Support Group: Child Accident Prevention Trust
Web:听听Email:听safe@capt.org.uk

Early onset eating disorders

Surveillance Period: March 2005 - May 2006
Investigator: Dr DE Nicholls, R Lynn, Dr RM Viner听
Published Papers: . Dr Nicholls DE, Lynn R, Viner RM,The British Journal of Psychiatry (2011) 198, 295鈥301.
Advice/Support Group: Beat
Web:听听Email:听fyp@beateatingdisorders.org.uk

Encephalitis in early childhood

Surveillance Period: October 1998 - October 2001
Investigator: Dr KN Ward, Consultant Virologist/Honorary Senior Lecturer, Dept of Virology, University College London, Windeyer Building, 46 Cleveland St, London W1P 6DB.听Professor EM Ross, Professor of Community Paediatrics, Mary Sheridan Centre, Guy's, King's & St Thomas' School of Medicine, 405 Kennington Road London SE11 4QW.
Published Papers: , Ward KN, Andrews NJ, Verity CM, Miller E,听Ross EM. Arch Dis Child. 2005;90;619-62233
Advice/Support Group: Encephalitis Support Group
Web:听听Email:听mail@encephalitis.

Enterovirus and parechovirus meningitis

Surveillance Period: July 2014 - July 2015
Investigator: Dr S Kadambari, Paediatric Infectious Diseases Research Group,听St George鈥檚 University of London,听London,听UK.
Published Papers:听听. Kadambari S, Braccio S, Ribeiro S, Allen DJ, Pebody R, Brown D, Cunney R, Sharland M, Ladhani S. Arch Dis Child.听Published Online First:听08 December 2018.听doi:10.1136/archdischild-2018-31564.
Advice/Support Group: Meningitis Research Foundation
Web:听

Fatal/severe allergic reactions to food ingestion

Surveillance Period: March 1998- February 2000
Investigator: Prof A Colver, Dr A Cant, Dr C MacDougall. Donald Court House, 13 Walker Terrace, Gateshead NE8 3EB.听
Published Paper:听听Macdougall CF, Cant AJ,听Colver AF. Arch. Dis. Child. 2002; 86: 236-239.
Advice/Support Group:听Anaphylaxis Campaign
Web:听 Email:听info@anaphylaxis.org.uk

Female genital mutilation

Surveillance Period: November 2015 - November 2017
Investigator: Dr D Hodes, University College Hospital, 250 Euston Road, London NW1 2PG
Published Paper:听Epidemiological surveillance study of female genital mutilation in the UK.听Hodes D, O鈥橠onnell NA, Pall K, Leoni M, Lok W, Debelle G, Armitage AJ, Creighton SM, Lynn RM. Arch. Dis. Child. 2020 Oct 6.
Advice/Support Group:听Foundation for Women's Health Research and Development (FORWARD)
Web:听听Email:听forward@forwarduk.org.uk

Food protein induced enterocolitis syndrome (FPIES)

Surveillance Period: January 2019 to January 2020听
Investigator: Dr G Stiefel,听Leicester Royal Infirmary, Infirmary Square, Leicester LE1 5WW,听Dr M Erlewyn-Lajeunesse,听Southampton General Hospital, Tremona Road, Southampton SO16 6YD
Published Paper:听. G Stiefel, C Alviani, NA Afzal, A Byrne, G du Toit, A DunnGalvin, J Hourihane, N Jay, LJ Michaelis, M Erlewyn-Lajeunesse. Archives of Disease in Childhood. 2021
Advice/Support Group:听,听

听

Galactosaemia

Surveillance Period: Jan 1988 - Sept 1991
Investigator: Mrs A Green, Dr J Holton, Dr M Honeyman*, Professor J Leonard *The Child and Family Centre, 142 Maas Road, Northfield, Birmingham B31 2PR听
Published paper:听; Honeyman MM, Green A, Holton JB, Leonard JV Arch. Dis. Child. 1993; 69: 339-341
Advice/Support Group: Galactosaemia Support Group
Web:听听Email:听sue@galactosaemia.org

Genital herpes

Surveillance Period: April 2007 - April 2008
Investigator: Dr R Reading, Consultant paediatrician, Norfolk and Norwich University Hospital, Colney Lane, Norwich, NR4 7UY听
Published Paper: , Reading R, Hughes G, Hill J, Debelle G, Arch. Dis. Child. 2011; 96 (8); pp.752-7
Advice/Support Group: 听触听info@contact.org.uk

Gonorrhoea, syphillis, chlamydia and trichomonas

Surveillance Period: January 2010 - January 2012
Investigator: Dr R Reading, Consultant paediatrician, Norfolk and Norwich University Hospital, Colney Lane, Norwich, NR4 7UY听
Published Paper: , Reading R,听Rogstad K, Hughes G, Debelle, G, Arch. Dis. Child doi: 10.1136/archdischild-2013-304996
Advice/Support Group: WellChild
Web:听听 E-Mail:听info@wellchild.org.uk

Group B streptococcal disease I

Surveillance Period: February 2000 - February 2001
Investigator: Dr P Heath, Dr A Nicoll. Paediatric Infectious Disease Unit and St George's Vaccine Institute, St George's Hospital London SW17 ORE
Published Paper:听听Heath PT, Balfour G, Weisner AM, Efstratiou A, Lamagni TL, Tighe H, O'Connell LAF, Cafferkey M, Verlander NQ, Nicoll A, AC McCartney. Lancet 2004; 363:292-4.
Advice/Support Group: Group B Strep Support
Web:听听Email:听info@gbss.org.uk

Group B streptococcal disease II

Surveillance Period: April 2014 - April 2015
Investigator: Prof P Heath, Dr C O'Sullivan. Paediatric Infectious Diseases Research Group, St George's University of London, Cranmer Terrace,听London SW17 ORE
Published Paper: . O'Sullivan CP, Lamagni T, Patel D, Efstratiou A, Cunney R, Meehan M, Ladhani S, Reynolds AJ, Campbell R, Doherty L, Boyle M. The Lancet Infectious Diseases. 2019 Jan 1;19(1):83-90.
Advice/Support Group: Group B Strep Support
Web:听听Email:听info@gbss.org.uk

Guillain-Barre syndrome / Fisher syndrome

Surveillance Period: September 2009 - August 2010
Investigator: Dr C Verity, Consultant Paediatric Neurologist, Department of Paediatrics, Addenbrooke鈥檚 Hospital, Hills Road, Cambridge CB2 0QQ
Published Paper: , Verity C, Stellitano L, Winstone AM, Andrews N, Stowe J, Miller E; The Lancet Vol 378, 29 Oct 2011, pp.1545-1546
, Verity C, Stellitano L, Winstone AM, Andrews N, Stowe J, Miller E; Arch. Dis. Child, published online 28 February 2014. Access the most recent version ar DOI: 10.1136/archdischild-2013-304475
Advice/Support Group: Guillain-Barre Support Group
Web:听听E-Mail:听office@gaincharity.org.uk听

Haemorrhagic shock encephalopathy syndrome

Surveillance Period: June 1986 - December 1988
Investigator: Dr S Hall, c/o Sheffield Children's Hospital, Stevenson Building, Sheffield S10 2TH
Published Paper:听听Bacon CJ, Hall SM. Arch. Dis. Child. 1992; 67: 985-993
Advice/Support Group: 听触听info@contact.org.uk

Haemolytic uraemic syndrome I

Surveillance Period: June 1986 - December 1989
Investigator: Dr M Taylor, Birmingham Children's Hospital, Steelhouse Lane, Birmingham
Published paper:听; Milford DV, Taylor CM, Guttridge B, Hall SM, Rowe B, Kleanthous H. Arch. Dis. Child. 1990; 65: 716-72
Advice/Support Group: Haemolytic Uraemic Syndrome Support (HUSH)
Web:听

Haemolytic uraemic syndrome II

Surveillance Period: February 1997 - February 2001
Investigator: Dr M Taylor, Birmingham Childrens Hospital, Steelhouse Lane, Birmingham, Richard Lynn, Dr G K Adak, Professor Sarah O'Brien, Ms Mary Locking
Published paper: , Lynn RM, O鈥橞rien SJ, Taylor CM, Adak GK, Chart H, Cheastry T, Cola JE,听Gillespie IA, Locking ME, Reilly WJ; Emerg Infect Dis. 2005: 11(4):590-6
Advice/Support Group: Haemolytic Uraemic Syndrome Support (HUSH)
Web:听

Haemolytic uraemic syndrome III

Surveillance Period: October 2011 - October 2014
Investigator:听Dr Bob Adak, Public Health England, 61 Colindale Avenue, London NW9 5EQ
Published paper:听,听Adams N, Byrne L, Rose T, Adak B, Jenkins C, Charlett A, Violato M, O'Brien S, Whitehead M, Barr B, Taylor-Robinson D, Hawker J. BMJ Paediatr Open. 2019 Dec 17;3(1).听
听

Haemophagocytic lymphohistiocytosis

Surveillance Period: September 1991 - August 1994
Investigator; Professor S Strobel*, Dr M Taylor, Dr J Pritchard, Institute of Child Health, 30 Guilford Street, London WC1N 1EH听
Published Paper: 10th BPSU Annual Report, London 1995听
Advice/Support Group: The Histiocytosis Research Trust
Web:听听Email:听info@hlhsupport.org

Haemophilus influenza B vaccination failure

Surveillance Period: September 1992 - August 1998
Investigator; Dr P Heath, St Georges Hospital

Hepatitis C virus (HCV) infection

Surveillance Period: March 1997 - March 1999听
Investigator: Dr D Gibb, Ms P Neave, Ms P Tookey Department of Epidemiology and Public Health, Institute of Child Health, 30 Guilford St, London WC1N 1EH.听
Published paper:听. Gibb DM, Neave PE, Tookey PA, Ramsay M, Harris H, Balogun K, Goldberg D, Mieli-Vergani G, Kelly D Arch Dis Child. 2000 Apr;82(4):286-91
Advice/Support Group: Children's Liver Disease Foundation
Web:听听Email:听info@childliverdisease.org听

Higher order births

Surveillance Period: February 1989 - December 1989
Investigator: Prof M Levene, Leeds General Infirmary, Belmont Grove, Leeds LS2 9NS
Published paper:听; Levene MI, Wild J, Steer P.Brit. Journ. Obst. and Gyn. 1992; 99: 607-613
Advice/Support Group: Multiple Births Foundation
Web:听听Email:听mbf@imperial.nhs.uk

HIV infection and vertical HIV exposure

Surveillance Period: June 1986 - June 2019
Investigator: Dr C Thorne, Reader in Infectious Disease Epidemiology, Population, Policy & Practice Programme, UCL GOS Institute of Child Health, 30 Guilford Street, London WC1N 1EH.听
Published paper: A full list of publications and presentations can be found at听
Advice/Support Group: Children's HIV Association (CHIVA)
Web:听听 Email:听message@chiva.org.uk

Hypocalcaemic seizures secondary to vitamin D deficiency

Surveillance Period: September 2011 - September 2013
Investigator: Dr E Basatemur, NIHR Academic Clinical Fellow, General & Adolescent Paediatric Unit, UCL GOS Institute of Child Health, 30 Guilford St, London WC1N 1EH.听
Published paper:听. Basatemur E, Sutcliffe A, J Clin Endocrinol Metab. 2014 Oct 3:jc20142773
Advice/Support Group: 听触听info@contact.org.uk

Inflammatory bowel disease

Surveillance Period: June 1998-June 1999
Investigator: Prof B Sandhu, Dr A Sawcenko. Royal Hospital for Sick Children, St Michaels Hill, Bristol BS2 8BJ
Published Paper: , Sawczenko A, Sandhu BK, Logan RFA, Jenkins H, Taylor CJ, Mian S,听Lynn R; The Lancet 2001; 357: 1093-94听
Advice/Support Group: Crohn's and Colitis UK
Web:听

Insulin dependent diabetes

Surveillance Period: Jan 1992 - Dec 1992
Investigator: Professor JD Baum, Dr E Wadsworth, Institute of Child Health, Royal Hospital for Sick Children, St Michael's Hill, Bristol BS2 8BJ听
Published Papers: , Wadsworth E, Shield J, Hunt L; BMJ 1995; 67:700-703
; Shield JP, Gardner RJ, Wadsworth EJ, Whiteford ML, James RS, Robinson DO, Baum JD, Temple IK; Arch. Dis. Child. 1997; 76: F39-F42
; Shield JP, Wadsworth EJ, Hobbs K, Baum JD;听Arch. Dis. Child. 1995 Feb;72(2):159-60
; Wadsworth EJ, Shield JP, Hunt LP, Baum JD; Diabetic Medicine 1997; 14(5): 390-6
Advice/Support Group: 听触听helpline@diabetes.org.uk

Internal abdominal injury due to child abuse

Surveillance Period: March 2002 - March 2003
Investigator: Dr P Barnes, Dr C A Norman, Dr AM Kemp, Professor J Sibert
Published Papers:听;听Barnes PM, Norton CM, 听Dunstan FD, Kemp A, Yates D, Sibert J;听The Lancet 2005; 366:234-235
Advice/Support Group: 听触听info@contact.org.uk

Intussusception

Surveillance Period: March 2008 - March 2009
Investigator: Prof B Taylor, D JC Cameron, S Marven, Dr H El Bashir
Published Papers: ; Samad L, Cortina-Borja M, El Bashir H, Sutcliffe AG, Marven S, Cameron JC, Lynn R, Taylor B;听Vaccine 2013 Aug 28; 31 (38): 4098-102
Advice/Support Group: 听触听info@contact.org.uk

Invasive fungal infection in VLBW infants

Surveillance Period: February 2003 - February 2004
Investigator: Dr W McGuire
Published Papers: 听;听Clerihew L, Lamagni TL,听Brocklehurst P, McGuire W; Arch Dis Child Fetal Neonatal Ed. 2006 May;91(3):F188-92听
Advice/Support Group: 听触听info@contact.org.uk

Invasive haemophilus influenzae infection

Surveillance Period: September 1992-October 2000
Investigator: Dr P Heath*, Dr M Slack. *St Georges' Hospital Medical School and Vaccine Institute, London SW17
Published Paper: R Booy, PT Heath, MPE Slack, N Begg, ER Moxon;听; Booy R, Heath PT, Slack MPE, Begg N, Moxon ER; Lancet 1997; 349: 1197-202
Advice/Support Group: 听触听info@contact.org.uk

Juvenile dermatomyositis

Surveillance Period: June 1992 - Dec 1993
Investigator: Dr D Symmons, Dr A Sills, ARC Epidemiology Research Unit, Stopford Building, University of Manchester, Oxford Road, Manchester, M13 9PT听
Published Paper:听; DP Symmons, JA Sills, SM Davis; Brit. Journ. Rheum. 1995; 34: 732-736
Advice/Support Group: Myositis Support Group
Web:听听E-mail:听msg@myositis.org.uk

Kawasaki disease I

Surveillance Period: June 1986 - December 1992
Investigator: Dr S Hall c/o Sheffield Children's Hospital, Stevenson Building, Sheffield S10 2TH
Published Paper: ; Dhillon R,听Newton L, Rudd PT, Hall SM; Arch. Dis. Child.1993. 69: 631-638
; Bissenden JG, Hall SM;听Brit. Med. J. 1990; 300: 1025-1026
Advice/Support Group: Kawasaki Disease Foundation
Web:听听Email:听info@kdfoundation.org

Kawasaki disease II

Surveillance Period: February 2015 - February 2016
Investigator: Prof R Tulloh,听University Hospitals of Bristol NHS Foundation Trust, Upper Maudlin Street, Bristol BS2 8BJ
Published Paper:听''; RMR Tulloh, R Mayon-White, A Harnden, et al.;听Arch Dis Child 2018;0:1鈥7. doi:10.1136/archdischild-2018-315087
Advice/Support Group: Societi - The UK Kawasaki Disease Foundation
Web:听

Langerhans cell histiocytosis

Surveillance Period: June 2003 - June 2005听
Investigator: Prof听L听Parker, Paediatric Epidemiologist, Newcastle University, Sir James Spence Institute, Royal Victoria Infirmary, Newcastle upon Tyne, NE1 4LP UK听
Published Paper:听;听Salotti JA, Nanduri V, Pearce MS, Parker L, Lynn R, Windebank KP; 听Arch Dis Child. 2009 May;94(5):376-80.Epub2008 Dec 5.听
Advice/Support Group: Histio UK
Web:听听Email:听info@hrtrust.org

Life threatening bronchopulmonary dysplasia

Surveillance Period: July 2017-July 2018 (13 months of surveillance). Follow-up until July 2019 (12 month follow-up).
Investigator: Dr S Harigopal, Dr J Berrington, Dr S Ramaiah, Neonatal Unit, Royal Victoria Infirmary, Newcastle NE1 4LP
Published paper: .听R Naples, S Ramaiah, J Rankin , J Berrington, S Harigopal.听 Arch Dis Child Fetal Neonatal Ed. 2021.听
Advice/Support Group: Bliss
Web:听听 Email: ask@bliss.org.uk

Listeria infection in infants

Surveillance Period: September 2017- September 2019
Investigator: Dr Stefania Vergnano, Bristol Royal Hospital For Children, Bristol. Professor Paul T Heath, St Georges University of London,听London.
Published paper: S Vergnano, G Godbole, A Simbo, A Smith-Palmer, M Cormican, A Mark and P Heath. ''. Archives Of Disease In Childhood.2021.
Advice/Support Group: Bliss
Web:听听 Email: ask@bliss.org.uk

Long-term parenteral nutrition

Surveillance Period: Feb 1992 - April 1992
Investigator: Prof D Candy, Professor E Ross, Dr S Devane, Department of Child Health and Community Paediatrics, King's College School of Medicine and Dentistry, London SE5 8RX听
Published paper: Survey of children on long term parenteral nutrition, UK and Eire 1992. BPSU 8th Annual Report 1993听
Advice/Support Group: 听触听info@contact.org.uk

Lowe syndrome

Surveillance Period: June 1986 - February 1988
Investigator: Dr C McKeown, Department of Medical Genetics, St Mary's Hospital, Manchester 13 OJH听
Published Paper: Lowe Syndrome. 听BPSU 2nd Annual Report;听McKeown C;听 BPSU London 1997.
Advice/Support Group: Lowe Syndrome Association
Web:听听E-mail:听info@lowesyndrome.org听

Malaria

Surveillance Period: January 2006 - February 2007
Investigator: Dr S Ladhani, Immunisation, Hepatitis and Blood Safety Department, Public Health Enlgand, 61 Colindale Avenue, London NW9 5EQ
Published Paper: ;听Ladhani S,听Garbash M, Whitty CJ, Chiodini PL, Aibara RJ, Riordan FA, Shingadia D; Paediatric Infectious Disease Journal, 29 (5); pp.434-438
Advice/Support Group: Malaria No More
Web: 听Email:听info@malarianomore.org.uk

Measles, mumps, rubella-meningoencephalitis

Surveillance Period: Jan 1990 - Dec 1991
Investigator: Dr N Begg, c/o PHLS CDSC, 61 Colindale Avenue, London NW9 5EQ
Published paper: ; Maguire HC,听 Begg NT, Handford SC;听Communicable Disease Report 1991; 1 (6): R57-R59
Advice/Support Group: Meningitis Now
Web:听听Email:听info@meningitisnow.org

Medium chain acyl-CoA dehydrogenase

Surveillance Period: March 1994 - March 1996
Investigator: Dr R J Pollitt, Prof J Leonad, Neonatal Screening Laboratory, Sheffield Children's Hospital, Sheffield S10 2TH听
Published paper: ; Pollitt RJ, Leonard JV;听Arch. Dis. Child. 1998; 79: 116-119
; Pollitt RJ, Green A, McCabe CJ et al.;听Health Technol Assess Report 1997
Advice/Support Group: Climb, Climb National Information and Advice Centre for Metabolic Diseases
Web:听 E-mail:听info@climb.org.uk.

Methicillin resistant staphylococcus aureus (MRSA) bacteraemia

Surveillance Period: June 2005 - June 2007
Investigator: Dr AP Johnson, Department of Healthcare-Associated Infections & Antimicrobial Resistance, HPA for Infections, London NW9 5EQ听
Published paper:听; AP Johnson, M Sharland et al.; Arch Dis Child. 2011 Jun;96(6):e1.
Advice/Support Group: 听触听info@contact.org.uk

Neonatal herpes I

Surveillance Period: June 1986 - Dec 1991

Investigator: Dr PA Tookey, Professor C S Peckham, Dr R Dinwiddie Unit of Epidemiology and Public Health, Institute of Child Health, 30 Guilford Street, London WC1N 1EH
Published Paper: ; Tookey P, Peckham CS;听Paediatric and Perinatal Epidemiology 1997; 10: 432-442
Advice/Support Group: Herpes Viruses Association
Web:听听E-Mail:听听 听

Neonatal herpes II

Surveillance Period: January 2004 - February 2007
Investigator: Dr P Tookey, Centre for Paediatric Epidemiology and Biostatistics, Institute of Child Health, 30 Guildford Street, London WC1N 1EH
Advice/Support Group: Herpes Viruses Association
Web:听听Email:听

Neonatal necrotising enterocolitis

Surveillance Period: October 1993 - October 1994
Investigator: Professor A Lucas, Ms R Abbott, Institute of Child Health, 30 Guilford Street, London WC1N 1EH听
Published Paper: Neonatal necrotising enterocolitis; Lynn R, Nicoll A, Guy M; BPSU 11th Annual Report 1996/7. London 1998
Advice/Support Group: 听触听info@contact.org.uk

Non-accidental poisoning / Munchausen syndrome by proxy

Surveillance Period: September 1992- August 1994
Investigator: Dr P Davis, Professor J Sibert, Professor SR Meadow, Dr R McClure听
Published paper: ; McClure RJ, Davis PM, Meadow SR, Sibert JR;听Arch. Dis. Child. 1996; 75: 57-61
Advice/Support Group: Contact
Web:听听 Email:听info@contact.org.uk

Non-type 1 diabetes

Surveillance Period: October 2004- October 2005
Investigator: Ms L Haines, Dr K Chong Wan, R Lynn, T Bartlett, Dr J Shields
Published paper: ; Haines L, Wan KC, Lynn R, Barrett TG, Shield JP;Diabetes Care. 2007; 30(5):1097-1101
Advice/Support Group: 听触听helpline@diabetes.org.uk

Neonatal meningitis

Surveillance Period: July 1996 - Dec 1997
Investigator: Dr D Holt, Mrs S Halkett, Karim Centre for Meningitis Research, Queen Charlotte's and Chelsea Hospital, London W6 0XG听
Published paper: ; Holt DE,听Halket S, de Louvois J, Harvey D;听Arch Dis Child Fetal Neonatal Ed 2001;84:F85-F89 F85听Advice/Support Group: Meningitis Now
Web:听听Email:听info@meningitisnow.org

Nutritional rickets

Surveillance Period: March 2015 - March 2017
Investigator: Professor M Blair, Northwick Park Hospital, Watford Road, Harrow HA1 3UJ
Dr P Julies,听Royal Free Hospital, Pond Street, London NW3 2QG
Published paper: , Julies P, Lynn RM, Pall K, Leoni M, Calder A, Mughal Z, Shaw N, McDonnell C, McDevitt H, and Blair M,听Arch Dis Child 105(6), pp.587-592.听
Advice/Support Group: Contact
Web:听听Email:听info@contact.org.uk

Patent Ductus Arteriosus (PDA)

Surveillance Period: Sept 2012听- Sept听2013
Investigator: Dr L听Lee, Queen's Medical Centre,Nottingham University Hospitals, Derby Road, Nottingham NG7 2UH.
Published paper: .听A Warnock, L Szatkowski, A Lakshmanan, L Lee & W Kelsall. BMC Pediatrics. 2021.听

Pyroxidine dependent seizures

Surveillance Period: Sept 1995 - Oct 1996
Investigator: Dr P Baxter, Reyegate Children's Centre, Sheffield Children's Hospital, Sheffield S10 2TH听
Published paper: ; Baxter P; Arch Dis Chil. 1999; 81(5); 431-3.
Advice/Support Group: 听触听info@climb.org.uk听

Raised blood lead levels

Surveillance Period: Jun 2010 - Jun 2012
Investigator: Dr. Ruth Ruggles, Public Health England, 61 Colindale Avenue, London NW9 5EQ
Published paper: , PHE publications gateway number 2018484, PDF, 520KB, 65 pages
Advice/Support Group: 听触听info@contact.org.uk

Rett syndrome

Surveillance Period: April 1990 - June 1990
Investigator: Dr A Kerr, Quarrier's Homes, Bridge of Weir, Renfrewshire, PA1 3SA
Published paper: Rett Syndrome: British Longitudinal Study (1982-1990) and 1990 Survey. JJ Roosendaal (ed.); in Mental Retardation and Medical Care. Uitgeverij Kerckebosch, Zeist 1991
BPSU Survey of Rett Syndrome.BPSU 5th Annual report 1990. London 1990.
Advice/Support Group: Rett听UK
Web:听听Email:听info@rettsyndrome.org.uk听

Reye's syndrome

Surveillance Period: June 1986-March 2001
Investigator: Dr S Hall, Mr R Lynn. C/o British Paediatric Surveillance Unit, 50 Hallam Street, London W1W 6DE
Published Papers: ; RM Hardie RM, Newton LH, Bruce JC, Glasgow JF, Mowat AP, Stephenson JB, Hall SM; Arch Dis Child. 1996 May;74(5):400-5听
Reye's Syndrome 1986-2001 15th BPSU Annual Report 2000听
Advice/Support Group: National Reye's Syndrome Foundation UK
Web:听

Scleroderma

Surveillance Period: July 2005 - July 2007听
Investigator: Dr A Herrick听
Published Papers: ; Herrick A, Ennis H,Bhushan TM, Silman A, Baildam E; Arthritis Care & Research 2010; 62 (2): 213鈥218听
Advice/Support Group: Scleroderma and Raynauds UK
Web:听 Email;听info@sruk.co.uk

Severe complications of varicella

Surveillance Period: November 2002 - November 2003
Investigator: Dr C Bramley
Published Papers: Severe complications of varicella 17th BPSU Annual Report 2002
;听Cameron JC, Allan G, Johnston F, Finn A, Heath PT, Booy R;听Arch Dis Child. Dec;92(12):1062-6.听
Advice/Support Group:听听触听info@contact.org.uk

Severe hyperbilirubinaemia

Surveillance Period: June 2003 - June 2005
Investigator: Dr Donal Manning, Department of Paediatrics, Wirral Hospital, Arrowe Park, Wirral CH49 5PE
Published Papers: ; Manning D, Todd P, Maxwell M, Platt MJ; Arch Dis Child Fetal Neonatal Ed 2007; 92 (3); pp.342-46听
Advice/Support Group: Children's Liver Disease Foundation
Web:听听Email:听info@childliverdisease.org听

Severe neonatal hypernatraemia

Surveillance Period: May 2009 - May 2010
Investigator: Dr Sam Oddie, Bradford Royal Infirmary, Duckworth Lane, Bradford BD9 6RJ
Published Paper: ; Oddie SJ, Craven V, Deakin K, Westman J, Scally A; Arch Dis Child Fetal Neonatal Ed. 2013 Sep;98(5):F384-7
Advice/Support Group: 听触听info@contact.org.uk

Severe visual impairment and blindness

Surveillance Period: October 1999-December 2000
Investigator: Dr J Rahi, Ms C Gilbert, Miss I R Eggett, Mr D Taylor, Professor C Peckham, Ms K Rantell. Dept of Epidemiology and Biostatisitics, Institute of Child Health, 30 Guilford Street, London WC1N 1EH
Published Paper: ;听Rahi J, Noriko C,on behalf of the British Childhood Visual Impairment Study Group (BCVISG.); 听Lancet 2003; 362: 1359-1365
Advice/Support Group: Fight for Sight
Web:听听 Email:听info@fightforsight.org.uk

Subacute sclerosing panencephalitis

Surveillance Period: June 1986-June 2001
Investigator: Dr E Miller, PHLS, 61 Colindale Avenue, London NW9 5EQ
Published Papers: ; Miller C, Farrington CP, Harbart K; Int. J. Ep. 1992; 21:(5):998-1006.
; Jin L, Richards A, Brown DWG;听Molec and Cell Probes 1996;10:191-200
; Miller C, Andrews N, Rush M, Munro H, Jin L, Miller E;听Arch Dis Child. 2004;89(12):1145-8
Advice/Support Group: Encephalitis Society
Web:听听Email:听mail@encephalitis.info

Subdural haematoma / effusion

Surveillance Period: April 1998-April 1999
Investigator: Dr C Hobbs, Dr J Wynne, Community Paediatrics, St James' University Hospital, Leeds LS9 7TF
Published paper: ;听Hobbs C, Childs AM, Wynne J, Livingston J, Seal A; Arch. Dis. Child.2005;90;952-955
Advice/Support Group: Children's Brain Injury Trust
Web:听听Email:听info@cbituk.org

Sudden unexpected early postnatal collapse

Surveillance Period: November 2008-November 2009
Investigator: Dr JC Becher, Dr A Lyon, DS Bhushan, Royal Infirmary of Edinburgh
Published Paper:听; Becher JC, Lyon A, Bhushan DS;听Arch. Dis. Child Fetal Neonatal Ed. 2012 Jan; 97 (1): F30-4
Advice/Support Group: 听触听info@contact.org.uk

Suspected fatal adverse drug reactions

Surveillance Period: June 2002 - June 2003
Investigator: Dr K Cheng, Professor T Stepehenson
Published Papers: 听; Cheng K et al.;Arch. Dis. Child. 2008 Jul;93(7):609-11
Advice/Support Group: 听触听info@contact.org.uk

Thrombosis in childhood

Surveillance Period: February 2001 - February 2003
Investigator: Dr B Gibson, Dr P Bolton-Maggs
Published Papers: Thrombosis in childhood 16th BPSU Annual Report 2001听
Advice/Support Group: 听触听info@contact.org.uk

Thyrotoxicosis

Surveillance Period: September 2004 鈥 September 2005
Investigator: Dr S Williamson
Published Paper: 19th BPSU Annual Report. 2005
Advice/Support Group: British Thyroid Foundation
Web:听听Email:听info@btf-thyroid.org

Toxic shock syndrome

Surveillance Period: October 2008 - October 2009
Investigators: Dr S Adalat & Dr T Dawson, Paediatric Nephrology Department, Evelina Children's Hospital, Westminster Bridge Road, London, SE1 7EH.听
Published Paper: ; Adalat S, Dawson T, Hackett SJ, Clark JE; Arch. Dis. Child doi: 10.1136/archdischild-2013-304741
Advice/Support Group: 听触听info@contact.org.uk

Transient and permanent neonatal diabetes

Surveillance Period: July 1994- August 1995
Investigator: Dr J Shield, Professor JD Baum, Institute of Child Health, Royal Hospital for Sick Children, Bristol, St Michael's Hill, Bristol, BS2听
Published paper: ; Shield JP,听 Gardner RJ, Wadsworth EJ, Whiteford ML, James RS, Robinson DO, Baum JD, Temple IK;听Arch. Dis. Child. 1997; 76: F39-F42
Advice/Support Group: 听触听helpline@diabetes.org.uk

Tuberculosis

Surveillance Period: December 2003 鈥 February 2005
Investigators: Dr D Shingadia, Dr S Teo
Published Paper: ; Teo SS, Riordan A, Alfaham M, Clark J, Evans MR, Sharland M, Novelli V, Watson JM,听Sonnenberg P, Hayward A, Moore-Gillon J, Shingadia D; Arch Dis Child. 2009 Apr;94(4):263-7
Advice/Support Group: 听触听info@contact.org.uk

Type 2 diabetes

Surveillance Period: April 2015 鈥 April 2016
Investigators: Prof J Hamilton-Shield, Dr TP Candler
Published Paper: ; Candler TP, Mahmoud O, Lynn RM, Majbar AA, Barrett TG, Shield JPH. Diabet Med. 2018 Jun;35(6):737-744. doi: 10.1111/dme.13609. Epub 2018 Mar 24.
Advice/Support Group: 听触听helpline@diabetes.org.uk

Vitamin K deficiency bleeding I (Haemorrhagic disease of the newborn)

Surveillance Period: March 1988 - February 1990听
Investigator: Dr AW McNinch, Dr H Tripp, Department of Child Health, Royal Devon; Exeter Hospital, Barrack Road, Exeter EX2 5DW听
Published paper: ; McNinch AW, Tripp JH; Brit. Med. J. 1991; 303: 1105-1109听
Advice/Support Group:听听触听info@contact.org.uk

Vitamin K deficiency bleeding II

Surveillance Period: February 1993 - December 1994
Investigator: Dr A McNinch, Dr J Tripp, Department of Child Health, Royal Devon; Exeter Hospital, Barrack Road, Exeter EX2 5DW 听
Published paper: ; McNinch A, Tripp J;听Arch. Dis. Child.. 2007 Sep;92(9):759-66
Advice/Support Group:听听触听info@contact.org.uk

X-linked anhydrotic ectodermal dysplasia

Surveillance Period: June 1986 - August 1986
Investigator: Dr A Clarke, University Hospital, Heath Park, Cardiff, CF4 4XW
Published paper: X-linked anhydrotic ectodermal dysplasia; 听D Clarke; BPSU 2nd Annual Report 1987. BPSU London
Advice/Support Group: Ectodermal Dysplasia Society

Web:听听Email:听diana@ectodermaldysplasia.org