- a multi-purpose platform for paediatric cholestatic disorders, such as biliary atresia and related diseases
British Paediatric Surveillance Unit - enabling researchers to find out how many children in the UK and ROI are affected by particular rare diseases or conditions
- collaborative organisation of 12 countries and 8,000 clinicians, with over 200 conditions studied so far
- European peer-reviewed scientific weekly online journal devoted to the epidemiology, surveillance, prevention and control of communicable diseases
- public research university composed of three colleges: Arts, Humanities and Social Sciences; Biomedical and Life Sciences;and Physical Sciences and Engineering
by independent charity Dolen Cymru - creating life changing partnerships between communities, schools and health organisations
- reference portal for information on rare diseases and orphan drugs
- national public health agency to protect and improve health and to reduce health inequalities
- with representatives of all clinical professions, organisations, parents and young people
- ensures equitable delivery of care to children with kidney disease