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British Paediatric Surveillance Unit

The BPSU is a world leading centre for rare paediatric disease surveillance. It enables doctors and researchers to investigate how many children in the UK and Republic of Ireland are affected by particular rare diseases, conditions or treatments each year.

Studies currently on the eReporting card ('orange card')

Congenital and hospitalised neonatal varicella
ROHHAD (Rapid-onset obesity)
This month's reporting instructions for these studies
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Apply to the BPSU

We welcome applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.
Apply to the BPSU
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Impact of BPSU

SInce 1985 we have facilitated research on over 100 rare conditions, and have immensely influenced decisions about these diseases and the impact on patients.
»Ê¼Ò»ªÈË our impact
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Get eReporting cards

If you are a consultant paediatrician or SAS doctor with your own case load working in the UK or Republic of Ireland, and do not already receive the BPSU eReporting cards, please complete our form.
Sign up
Search all BPSU current studies

Other BPSU content

Past studies
Surveillance of HIV infection and vertical HIV exposure
Patient and public involvement
Research using health records
BPSU privacy notice
Bulletins
Rare disease tea party - reports from past events
Partnership Board
Scientific Committee
BPSU Sir Peter Tizard research bursary
Annual reports
Other research activities at RCPCH

Research news from the College

More news
Vertex Logo
Announcement
15 October 2024

Invitation to apply for a fully funded, one-year industry placement

RCPCH is delighted to announce an exciting partnership with Vertex and the Faculty of Pharmaceutical Medicine on the Vertex Physicians in Pharma Programme (VPiPP). This unique, one-year work placement is for clinicians in training who wish to enrich their curriculum and knowledge by understanding an...
Small baby sleeping in cot
Announcement
5 August 2024

Applications now open for BPSU's bursary to run a rare disease study

We invite trainee paediatricians and newly qualified consultants to apply for the annual British Paediatric Surveillance Unit's Sir Peter Tizard bursary. The successful applicant receives a fully funded slot on the BPSU Orange Card and a stipend towards their training needs. The deadline is Monday 2...