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Information

The BPSU is a world leading centre for rare paediatric disease surveillance. It enables doctors and researchers to investigate how many children in the UK and Republic of Ireland are affected by particular rare diseases, conditions or treatments each year.

How does the BPSU reporting scheme work?

Each month, an eReporting card (also known as the 'orange card') is sent to reporting clinicians asking if they have seen any cases from a list or conditions or if they have 'nothing to report'.

If they have seen any cases, the reporting clinician is sent a short questionnaire by the study investigator to collect further information about the case.

The system is based on an active surveillance methodology. So, it is important that reporting clinicians return the eReporting Card even if they do not have any cases to report.

Who receives the eReporting card?

If you are a consultant paediatrician or SAS doctor with your own case load working in the UK or Republic of Ireland, and do not already receive the BPSU eReporting cards, please complete this form.

Your privacy

We take your privacy seriously and will only process your data in line with UK data protection legislation.

The BPSU privacy notice covers the personal data of the clinical respondents who contribute to the BPSU epidemiology system.

Contact

If you have any queries please contact us on bpsu@rcpch.ac.uk.