»Ê¼Ò»ªÈË
OPEN UK aims to unite children's regional and national epilepsy networks to improve integrated care for children and young people with epilepsies, and has representation from all regional epilepsy networks.
It also aims to:
- encourage collaboration and sharing of regional and national ideas, pilots, and resources
- be a national resource and professional UK body to which other organisations may come for information, support, data and strategic or clinical input
- facilitate links to local, regional and national funding bodies.
The current chair of the OPEN UK Working Group is Dr Richard Brown.
You can download the terms of reference below.
»Ê¼Ò»ªÈËof OPEN UK
| Network (acronym) | Network (full name) |
Network Lead(s) |
EQIP Advisory Group (see below information about EQIP) |
|---|---|---|---|
|
BPEG |
British Paediatric Epilepsy Group |
Suresh Pujar Sara Aylett |
- |
|
BRPNF |
Birmingham Regional Paediatric Neurology Forum |
Ramiah Ramalakshmi |
Vacant post |
|
CEWT |
Maria Moran |
Rachael Wheway |
|
|
EPEN |
Arun Saraswatula |
Carolyn McAskill, Jill Conium |
|
|
EPIC |
Mersey and North Wales Network 'Epilepsy in Childhood' Interest Group |
Neisha Dunbar-Creasey Jim Pauling |
Laura Neely |
| NI | Northern Ireland |
Lesley-Ann Funston Clare Loughran |
- |
|
NTPEN |
Amit Bali |
Emma Hassan |
|
|
NWEIG |
North West Children and Young People's Epilepsy Interest Group |
Sri Nagesh Panasa |
Amanda Hirst |
|
ORENG |
Oxford Region Epilepsy Interest Group |
Bolutito Akinbiyi |
Alison Mollett |
| PENNEC | Paediatric Epilepsy Network for the North East and Cumbria |
Anita Devlin Ramesh Kumar |
Ian Webster |
|
SETPEG |
Dionysios Grigoratos |
Amanda Tomalin |
|
|
SPEN |
Andreas Brunklaus |
- |
|
|
SWEP |
South Wales Epilepsy Forum |
Silvia Sanchez Marco Victoria Currigan |
Vacant post |
|
SWIPE |
Andrew Lux |
Debbie Dean |
|
|
SWTPEG |
South West Thames Paediatric Epilepsy Group |
Tim Kerr |
Vacant post |
|
TEN |
Trent Epilepsy Network |
Suhail Habib |
Vacant post |
|
WPNN |
Wessex Paediatric Neurosciences Network |
Andrea Whitney |
Sharon Seton |
| YPEN | Yorkshire Paediatric Epilepsy Network |
Sandhya Jose Christine Bennett |
Vacant post |
Epilepsy12 audit and QI
The RCPCH Epilepsy12 audit aims to help services measure and improve the quality of care for children and young people with seizures and epilepsies.
The RCPCH supports paediatric epilepsy service teams to identify sustainable improvements in their services.